Not much change today. He was able to switch back to the nasal cannula for a couple hours at lunch without de-saturating but ultimately had to go back to the mask. That's progress though. Dr. Williams, Parker's PH doctor, stopped by this afternoon. He has been out of town for a few days and came to get an update. I expressed to him our concerns about the screw-ups with his medications that we found the other day. He was also frustrated by that. It's hard to tell how much that may have impacted Parker's recovery. We're really strict with his medication schedule at home so he's not used to missing those meds or having them be different. Hopefully we have that all solved now but it may take a few days to get his body back to it's normal levels on the medications.
At this point the goal is pretty much to try to wean him down to a low enough oxygen level that we could manage at home. It seems like we're still a long way away from that. The concentrator we have at home can only do 5 liters per minute and so far he's requiring a lot more than that.
I picked up the new Spider-man movie at the store today on my way to the hospital and he enjoyed watching that. We also painted a bird house, played a couple rounds of "Go Fish", and spoke with Grandma and Grandpa Romney via FaceTime. He's pretty groggy right now because he had some sort of allergic reaction to something (not sure what) that made his legs break out in a rash that was really itchy. They gave him a big dose of Benadryl which fixed it but now he's really drowsy.
Hopefully tomorrow we'll see some more progress.
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