Tuesday, July 22, 2008
Pulmonary Hypertension Podcasts
As many of you know, Parker was recently diagnosed with Pulmonary Hypertension. This is a rare, life-threatening, and currently incurable disease. An independent film company "Periwinkle Films" is producing a biweekly video podcast about pulmonary hypertension in an effort to raise awareness for the disease and provide support for patients and caregivers. The first episode dated July 14, 2008 is great. It includes a discussion with one of the leading doctors in the field and a compelling patient story. For all of you who are curious about what we're going through and what this disease is all about, we highly recommend these videos.
Subscribe to:
Post Comments (Atom)
2 comments:
Jen,
I went to the site and watched it. What great info and the personal experience was good to see. Thanks for giving out the podcast info. It looks like the kids had a good time camping. Sorry it wasn't what you had hoped for. Hang in there! Love you
Great info and certainly strengthened my hope for Parker's future. Love you all! Grandma R.
Post a Comment